The Sean Project

Sean is our 29 year old deafblind son and this is the ongoing story of Sean, what he does and how he interacts with us, our friends, our horses and our pets.

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Tuesday, June 30, 2009

Well, we are in it now

Over the last weeks we have been spraying the Colorado state government with e-mail, we have been organizing friends into groups and soliciting help to try and back this runaway train up the tracks and away from our son.

Thanks to the unwavering and loving support of Carl and Holly Carlson, Paulette and Terry Mahurin we have started putting things together. We have sent e-mails to agencies, to TV stations and to people in order to gather support. Both Nancy and myself are just humbled by our great friends and their organizational and writing and support skills. It is thanks to them that I think we can actually ameliorate this situation.

I wrote to the Archdiocese of Denver asking for the support and help of Archbishop Chaput. Within hours of sending that e-mail we had received e-mails of support from the Chancellor of the Archdiocese and from Archbishop Chaput himself - in Rome on church business and still finding time to reach out. It is messages like these that really do help.

Sean is doing fine for the moment, the radical changes that the Department of Developmental Disabilities is trying to visit upon us will not be in full force yet, though as of tomorrow, the new, repressive regime begins.

We are sending a request in to get the material relating to the whole SIS (Supports Intensity Scale) system of "scoring" that is being used to justify throwing our son under the bus so that we can possibly get some expert review of it. We are also requesting copies of the full evaluation that was done on our son - and by whom, because no-one that we are aware of ever did any inspection or overview of Sean or us.

If you are reading this - please take action - severely disabled people and their families are being ridden roughshod over. It is only the loud expressions from interested and supportive people that will get these apparatchiks to even take a look at what they are doing. Go to the Colorado state government web site, send messages of protest to Governor Ritter.

Just as an aside - if you live in Colorado Congressional District 7 and have Ed Perlmutter as your Rep - well you have our sympathies. Apparently Ed feels it is beneath him to actually correspond with his constituents. No doubt he is busy passing tax increases while supporting the slashing of support for the disabled.

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